Skip to main content

Work/Vacation

We're heading on vacation next week and I know I need it.

 You know when you just feel worn down, not as efficient.

 I know I mentioned our videos before and the last one was released today.  Often when I feel worn down I watch one of our videos to inspire me again.  

 Seriously almost all of them make me cry.  It could be because I'm getting to know a lot of the people in the videos.  I worked with Kara a lot on their Bay Area Walk in May.  I just had my first call with Genneia last week to start planning the LA Walk in January.



If you feel like donating to support research and support for Nephrotic Syndrome & FSGS, I have a fundraising page for the half marathon I'm doing in July.  Click here if so inclined.  I'm completely failing on fundraising while the main volunteer behind the event is killing it...he recruited 60 runners already.  
When we heard that our child has a disease with no known cure, no treatment, and no known cause... Our lives changed forever. So we do anything we can to help our son, Will.
Nephrotic Syndrome is an autoimmune disorder that causes Will's body to attack his kidneys. We do not know what causes it, and there are no definitive treatments. Will has been struggling to keep his illness under control for the past 5 years. With the support of Nephcure and people like yourselves, we have been able to get through the hard times. This video made a year ago tells his story: youtu.be/sQ4Nc_u0t5c
For the fifth year in a row, Team Will is taking part in the Chicago Rock 'n' Roll Half marathon and 10K. The date for the race is July 17th, and all funds raised will go to NephCure Kidney International- the only organization committed to finding a cure for our son's disease: Nephrotic Syndrome. 
Please consider donating to our cause or running with Team Will this year to raise funds and awareness. 
Together, we are leading the charge against kidney disease FSGS and Nephrotic Syndrome. NephCure is funding the best and brightest researchers, educating patient families across the globe and partnering with pharmaceutical companies to find a cure! 
Will you please join us in this fight?
Together we can make a difference! - Team Will
Labels:

Comments

Post a Comment

Popular posts from this blog

Fall Photos

After admiring the leaves on our runs and my bike to work, we recruited my parents to take some photos of us there this weekend.   After these photos (and tackling some IT issues for my parents) we went to a birthday gathering at the jazz festival on Cherokee Street.  I liked it more than I thought I would. As the night wore on, I started chatting with one of the friend of a friend's there.  I started going in to what a crazy year and some change it's been and, whew, it really started to overwhelm me.   This morning, Mike woke up overwhelmed by our world/specifically our country.  I woke up with that conversation still in my head and also felt overwhelmed.  We treated ourselves to Sump Coffee and had a chat.  It's not always we sit down and talk about what we want and steps to get there. Fall feels like the perfect time to reset.  As we went through the day I also thought, it's okay to miss things in the past, but it woul...
1 comment
Read more

Concerts = ♡

Last week was an exceptional concert week for me.  I was lucky enough to catch San Fermin, The Mowgli's, & American Authors.  In one week! My sister, Karen, and I found out San Fermin would be in Chicago at LouFest when we went through the artist signing line.  (Correction: Karen participated in the artist signing line, while I hid behind her shoulder and Ellis, the composer/writer, reached out to me to introduce himself.  This band is full of quality people.  Just sayin'.  I get awkward around bands.)   So we followed through.  Found their show at the Metro (which could not be more convenient for us) and met up with Rubina, my friend, to enjoy their show.  So good.  We were not disappointed.  I was only minutely disappointed because for some reason I assumed they were headlining so when they didn't come out for an encore I was confused.  But then I realized they were the middle act and it made sense. ...
Post a Comment
Read more

Kitchen Safety

We moved!  We're in our new place and we just got wifi.  Wahoo! I definitely broke in the kitchen quickly.  I was making a panini type sandwich for a potluck get together so I preheated the oven.  The next thing I knew the fire alarm was going off.  Let me tell you they did not skimp on a very loud fire alarm.  Ahhhhhhhh I opened the oven, which I know you're not supposed to do.  In the moment, I think I needed to see what I was dealing with.  There were definite flames.  Ahhhhhhhh So I called Mike while trying to google what to do.  He was super calm the entire call while I freaked out (it probably helped that he couldn't see the smoke billowing out of the oven).   He said to throw baking soda on it.  I did.  It seemed to fizzle but came back. I searched the apartment for a fire extinguisher (maybe I should have looked for one before this moment). This is while I kept trying to silence the fire ...
3 comments
Read more