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Work/Vacation

We're heading on vacation next week and I know I need it.

You know when you just feel worn down, not as efficient.

I know I mentioned our videos before and the last one was released today.  Often when I feel worn down I watch one of our videos to inspire me again.  

Seriously almost all of them make me cry.  It could be because I'm getting to know a lot of the people in the videos.  I worked with Kara a lot on their Bay Area Walk in May.  I just had my first call with Genneia last week to start planning the LA Walk in January.





If you feel like donating to support research and support for Nephrotic Syndrome & FSGS, I have a fundraising page for the half marathon I'm doing in July.  Click here if so inclined.  I'm completely failing on fundraising while the main volunteer behind the event is killing it...he recruited 60 runners already.  

When we heard that our child has a disease with no known cure, no treatment, and no known cause... Our lives changed forever. So we do anything we can to help our son, Will.
Nephrotic Syndrome is an autoimmune disorder that causes Will's body to attack his kidneys. We do not know what causes it, and there are no definitive treatments. Will has been struggling to keep his illness under control for the past 5 years. With the support of Nephcure and people like yourselves, we have been able to get through the hard times. This video made a year ago tells his story: youtu.be/sQ4Nc_u0t5c
For the fifth year in a row, Team Will is taking part in the Chicago Rock 'n' Roll Half marathon and 10K. The date for the race is July 17th, and all funds raised will go to NephCure Kidney International- the only organization committed to finding a cure for our son's disease: Nephrotic Syndrome. 
Please consider donating to our cause or running with Team Will this year to raise funds and awareness. 
Together, we are leading the charge against kidney disease FSGS and Nephrotic Syndrome. NephCure is funding the best and brightest researchers, educating patient families across the globe and partnering with pharmaceutical companies to find a cure! 
Will you please join us in this fight?
Together we can make a difference! - Team Will

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